Jack's Tachycardia is back.

[Ferd]

Originally Posted by Pressing-On

Ferd,
Can you give us a little more details as to what the doctor is saying? What is the progression with Jack right now? What do they need to see? Same thing as you posted in the beginning or is this another stage?

If you remember, the day before he was born the doctors did a sonogram and found his heart rate was over 300. They called it Super Ventricular Tachycardia.

He came out of that a few hours later and was born the next day. From that day until yesterday he was clear of any kind of event with his heart.

Yesterday he went into SVT twice.

I have not gotten to talk to the Cardiologist but my wife spoke to the neonatologist and he is now on a drug Propanolol to regulate his heart rate.

I simply don't have any more information than that and need to talk to the Cardiologist. We don't know what the long term outlook is as of yet. We don't know what this means as far as him coming home, and we don't know what this means on how we have to deal with it once he does come home.

Frankly I have way more questions than answers. All I know is my little boy has a serious problem with his heart.

I will update as soon as I know more.

[CC1]

Ferd,

I am praying for Jack and will continue to do so.

[Pressing-On]

Thanks, Ferd! We are interested in the progress and will continue to pray!!!

[AmazingGrace]

Ferd I am so sorry I didnt see this earlier! I am praying. I guess I was so consumed with our drama and I didnt stop to read. Again I am so sorry and if yall need anything let us know please!

[DividedThigh]

prayin for my little bud,dt

[Ferd]

Ok Jack has 2 issues with his heart.
The first is the hole in his heart. This is the murmur
It’s called Ventricular Septal Defect (VSD)

The Dr. said she could barely hear it and it will likely close on its on. If not, its not a big deal. He can live a normal life to 100 years, join the military, play sports etc.

The second is related to the fast heart rate. This is called Super Ventricular Tachycardia (SVT)

The Dr said of all the kinds, this is the easiest to treat.
Generally babies out grow it by age 1 if not, then at age 4 they do a procedure to kill the cell that is causing the fast heart rate. This is a cure. That is the Drs. word.

He will be on some kind of medicine until he is about age 1 then they will let him outgrow the dosage and check to see if he is still having the SVTs.

We will have to check his heart rate several times a day. And if he is in the SVT we need to take him to the Emergency room for treatment.
He can be in the SVT for a few hours without it being any kind of danger to Jack. If it goes on for 24 hours it can be dangerous.

But by checking him regularly it won’t be an issue. Again, he can play sports and do anything he wants without this being a major concern.

I also asked about kids who just die while playing some kinds of sports and she explained there are 3 or 4 specific defects that are the cause of all of those things. She said, he doesn’t have any of those types of problems at all so there is no worry.

Over all it was good news. We just have to deal with meds for a year and checking his heart rate…. And we will likely check the heart rate way too often….

In other good news, they took the feeding tube out of his nose and expecting him to take his food by bottle now. We are taking the car seat up to the NICU tonight for a study. They will put him in it for a couple of hours and monitor his vitals to see how he tolerates everything. He will have the hearing test tomorrow and we are targeting next Monday for him to come home provided all goes well!


Thank you all for the continued prayer! We aren’t out of the woods yet but we are very encouraged! Please continue to pray for Baby Jack!

[Ron]

You, Jack, & your family are in continued prayer Ferd!

Glad to hear of an encouraging update.

God is good.

[AmazingGrace]

Ferd, After reading your last post I called my ex... and it is what I thought. His youngest son (Mikes baby brother) had this exact same thing. When I heard all you said it reminded me because we had a bad ordeal with it in that they didnt tell my oldest 2 that the baby had SVT and they went down there the last time to see him and he was on the heart monitor and they picked my kids up at the airport and dropped them off and left to go on a date leaving them to care for the baby. Well his monitor went off and he went into SVT with them alone with him and my daughter freaked... so bad we had to fly her back home the next day she was so shaken.

All that to say nothing but that I know now more what he has and I do want to say that he has already grown out of this and he is doing wonderfully! No more monitors and he gets checked every 6 months but has been clear since he was 14 mos old.

[Kay B]

Continuing to pray for lil JacK and for you all. Thank you for the updates.

[Sherri]

I just now saw this, Ferd. Glad that you got some good news. We will continue to pray for Jack.