Doctors and family members interviewed by New Times say up to 20 children from families in the polygamist community are currently afflicted with the condition that requires full-time attention from caregivers. Victims suffer a range of symptoms, including severe epileptic seizures, inability to walk or even sit upright, severe speech impediments, failure to grow at a normal rate, and tragic physical deformities.
"They are in terrible shape," says Dr. Kirk A. Aleck, director of the Pediatric Neurogenetics Center at St. Joseph's Hospital. Aleck is a geneticist who participated along with Tarby and others in the groundbreaking study of several polygamous families with fumarase deficiency in the late 1990s.
From the Phoenix News as well.
Twenty children out of almost 500?? Don't visit my daughter's elementary school. I think there are at least that many out of about 300 kids that attend there!!
According to the stats put out there, at least 3 of them should be autistic as well.
I think someone is really trying to reach out to keep from hanging themselves.
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I've gone and done it now! I'm on Facebook!!!
Who takes care of these unfortunate souls is not the focus of my interest.
These defects are PREVENTABLE!
Nina
Who says they are preventable and what proof is there to that claim?
Can you prevent seizure disorders in a child?
What about a condition that causes them to have an inability to walk or even sit upright?
Severe speech impediments? I grew up with kids who suffered from that. Children from run-of-the-mill families.
Failure to thrive? I see children like that everyday. Not one of them is in state custody for it.
Tragic physical deformities? You can prevent these how? I mean, some are preventable, but most or all? Not hardly.
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I've gone and done it now! I'm on Facebook!!!
And so we stand by and let them produce more special needs children? Brittle bone disease is not that common.
We also have laws in this country about how closely you can be related to someone and still marry them. Those laws were put in place for reasons such as this.
In all fairness, if we suggest that people stop having children to prevent the occurance of special needs children, that eliminates so many from ever having children, especially those who are carriers of diseases that are devastating, like muscular dystrophy, hemophilia, Huntington's Chorea, and several more, not to mention those with a history of cancers and heart diseases and diabetes, where it's more likely than not that their offspring will inherit those genes, many of which will make them 'special needs children'.
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I've gone and done it now! I'm on Facebook!!!
I don't believe that one out of every one hundred children have had a broken bone sometime in their life.
There is a member on this forum who has a 8 yr old daughter that had broken three of her four extremities in her life! Someone call CPS!!!
Quote:
Originally Posted by HeavenlyOne
Oops, I just told on ya.....LOL!
Quote:
Originally Posted by HeavenlyOne
I stand corrected.
CALL CPS!!! Save her children!!!
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Psa 19:14 Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O LORD, my strength, and my redeemer.
1Pe 5:6-7 Humble yourselves therefore under the mighty hand of God, that he may exalt you in due time: Casting all your care upon him; for he careth for you.
Tit 3:2 To speak evil of no man, to be no brawlers, but gentle, shewing all meekness unto all men.
Psa 51:10 Create in me a clean heart, O God; and renew a right spirit within me.
The sect is the one saying that if any children had broken bones they would have been taken to doctors outside the compound, not that they had taken any children to hospitals or doctors for broken bones.
Quote:
FLDS spokesman Rod Parker called Cockerell's testimony "a deliberate effort to mislead the public."
Parker said any broken bones would have been treated in medical facilities away from the Yearning For Zion Ranch in Eldorado and that doctors are required to report suspected abuse.
I don't believe that there is a suggestion that over 40 kids have had broken bones with no medical treatment.
So, did they have broken bones, and if so, then they were taken to medical facilities outside the compound, right?
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I've gone and done it now! I'm on Facebook!!!
Who says they are preventable and what proof is there to that claim
Tragic physical deformities? You can prevent these how? I mean, some are preventable, but most or all? Not hardly.
Sister
The preventable disease to which i referred was Fumarase Deficiency.
This is from Wiki:
Fumarase deficiency is extremely rare. Until roughly 18 years ago scientists knew of only thirteen cases worldwide . However, recently twenty additional cases have been documented in the Arizona/Utah border towns of Colorado City, Arizona, and Hildale, Utah[9] These two towns constitute a closed and controlled community, and were settled in the 1930s by the Fundamentalist Church of Jesus Christ of Latter Day Saints, which is a breakaway sect now unaffiliated with The Church of Jesus Christ of Latter-day Saints. As such, many of the surrounding communities refer to this disease as "Polygamist's Down's"[10]
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