I will be praying for your son! I too had supraventricular tachycardia. First discovered when I was 5 or 6, and didn't fully manifest until I was 8. The medicine to control it was cheap (thankfully, my parents were poor at the time :-) ) , and at the age of 12 I managed to get radiofrequency ablation, which "cures" it. I'm sure you can google this for more info.
God has you and your son in his tender and wise hands!
I will be praying for your son! I too had supraventricular tachycardia. First discovered when I was 5 or 6, and didn't fully manifest until I was 8. The medicine to control it was cheap (thankfully, my parents were poor at the time :-) ) , and at the age of 12 I managed to get radiofrequency ablation, which "cures" it. I'm sure you can google this for more info.
God has you and your son in his tender and wise hands!
thank you for sharing your story. These things are really a comfort to me. it is amazing how many people you find that have gone thru what you are going thru.
__________________ If I do something stupid blame the Lortab!
Ok Jack has 2 issues with his heart.
The first is the hole in his heart. This is the murmur
It’s called Ventricular Septal Defect (VSD)
The Dr. said she could barely hear it and it will likely close on its on. If not, its not a big deal. He can live a normal life to 100 years, join the military, play sports etc.
The second is related to the fast heart rate. This is called Super Ventricular Tachycardia (SVT)
The Dr said of all the kinds, this is the easiest to treat.
Generally babies out grow it by age 1 if not, then at age 4 they do a procedure to kill the cell that is causing the fast heart rate. This is a cure. That is the Drs. word.
He will be on some kind of medicine until he is about age 1 then they will let him outgrow the dosage and check to see if he is still having the SVTs.
We will have to check his heart rate several times a day. And if he is in the SVT we need to take him to the Emergency room for treatment.
He can be in the SVT for a few hours without it being any kind of danger to Jack. If it goes on for 24 hours it can be dangerous.
But by checking him regularly it won’t be an issue. Again, he can play sports and do anything he wants without this being a major concern.
I also asked about kids who just die while playing some kinds of sports and she explained there are 3 or 4 specific defects that are the cause of all of those things. She said, he doesn’t have any of those types of problems at all so there is no worry.
Over all it was good news. We just have to deal with meds for a year and checking his heart rate…. And we will likely check the heart rate way too often….
In other good news, they took the feeding tube out of his nose and expecting him to take his food by bottle now. We are taking the car seat up to the NICU tonight for a study. They will put him in it for a couple of hours and monitor his vitals to see how he tolerates everything. He will have the hearing test tomorrow and we are targeting next Monday for him to come home provided all goes well!
Thank you all for the continued prayer! We aren’t out of the woods yet but we are very encouraged! Please continue to pray for Baby Jack!
Ferd,
Knowing of course that any health issues with our kids is horrible it sounds like considering how bad this could have been this is good news. I am sure it will be a long year or two while this all sorts out but thank heavens it looks like there will be clear sailing ahead for Jack as far as living a normal life goes. I will continue to pray.,
My husband has lived with irregular heart beats for 40 years- It has not slowed him down one bit. The only time he discusses it is when he want to get out of something!!!
Hey Ferd, maybe they can give you guys one of those heart monitors. A brother from the church ended up getting one of those for all his children when they were born.
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